I’m so fortunate to write a weekly column for Hypoparathyroidism News. The organization is part of the larger company, Bionews, which specializes in highlighting over fifty rare diseases with both scientific articles and personal experience columns from both patients and caregiver perspectives.
Here are my February 2025 columns:
February 7, 2025
In my debut column, Before my hypoparathyroidism diagnosis, I felt it in my bones, I speak about my journey to diagnosis and the twists and turns along the way.
Read my debut column
February 14, 2025
For my Valentine’s Day column, I wrote Hypoparathyroidism feels like a heavy weight, but love helps explaining the delicate balance I must walk to maintain my health, even when my heart is breaking.
Read my Valentine's Day column
February 21, 2025
Sometimes I wish hypopara had a different name, one that wasn’t so easily confused with other chronic disease, like hypothyroidism. Here are some tips and tricks I use to protect my health when my voice isn’t being heard. Read my column.
What’s in a name? How I clarify what ‘hypopara’ is — and isn’t
February 28, 2025
Friday, February 28 is Rare Disease Day. My relationship has evolved over the year to be more than just sharing my story. Now, more than ever, it’s become a battle cry as we fight new policies that impact much needed research on hypopara. Please read and share my column:
Butterfly to battle cry
